{"id":12495,"date":"2022-02-22T06:42:01","date_gmt":"2022-02-22T06:42:01","guid":{"rendered":"https:\/\/densebreastscanada.ca\/?p=12495"},"modified":"2022-02-22T07:30:22","modified_gmt":"2022-02-22T07:30:22","slug":"tina-martel-has-gone-through-breast-cancer-twice-heres-what-she-wishes-she-were-told-and-what-all-women-need-to-know","status":"publish","type":"post","link":"https:\/\/densebreastscanada.ca\/fr\/tina-martel-has-gone-through-breast-cancer-twice-heres-what-she-wishes-she-were-told-and-what-all-women-need-to-know\/","title":{"rendered":"Tina Martel has gone through breast cancer twice. Here’s what she wishes she were told and what all women need to know."},"content":{"rendered":"

Tina Martel est enseignante en beaux-arts et artiste professionnelle. Elle est \u00e9galement l'auteur du livre illustr\u00e9, prim\u00e9 \u00e0 plusieurs reprises Not in the Pink, bas\u00e9 sur son premier diagnostic. Tina a \u00e9t\u00e9 pr\u00e9sent\u00e9e en ligne et dans de nombreuses publications en tant que mod\u00e8le plat et porte-parole de \"vivre \u00e0 plat\".<\/p>\n

Aujourd'hui, le 22 f\u00e9vrier, Journ\u00e9e de sensibilisation sur la poitrine dense. De nombreuses femmes, dont moi-m\u00eame, ignorent compl\u00e8tement la n\u00e9cessit\u00e9 de d\u00e9terminer leur densit\u00e9 mammaire et son lien avec un diagnostic potentiel de cancer. Lors de mes nombreuses mammographies, qui ont commenc\u00e9 \u00e0 40 ans, \u00e0 cause de mes ant\u00e9c\u00e9dents familiaux, on m'a dit que j'avais des tissus mammaires denses, peu lisibles, compliqu\u00e9s par de nombreux kystes. Mais l'importance d'\u00eatre extr\u00eamement prudente ou le risque accru que je pourrais courir n'ont jamais \u00e9t\u00e9 discut\u00e9s avec moi. Je n'avais absolument aucune id\u00e9e qu'il y avait une \u00e9chelle num\u00e9rique qui d\u00e9crivait mes risques. Contre toute attente, mon tissu dense me rendait un peu moins vigilante. Lorsque je d\u00e9couvrais une grosseur, je l'attribuais \u00e0 mon tissu mammaire dense et fibreux et retardais les suivis. Comme les bosses apparaissaient et disparaissaient souvent en l'espace de quelques mois, je n'ai pas paniqu\u00e9 quand j'ai trouv\u00e9 celui qui se r\u00e9v\u00e9lerait \u00eatre un cancer. Finalement, quand il n'a pas disparu, je suis all\u00e9e le faire v\u00e9rifier. La mammographie \u00e9tait suspecte, l'\u00e9chographie a indiqu\u00e9 une exploration plus pouss\u00e9e et la biopsie a confirm\u00e9 un cancer du sein.<\/p>\n

Ce premier diagnostic a \u00e9t\u00e9 pos\u00e9 le 5 septembre 2011. Il s'agissait d'un stade 2B du cancer \u00e0 r\u00e9cepteurs d\u2019\u0153strog\u00e8nes et progest\u00e9rones (ER\/PR) positifs qui a n\u00e9cessit\u00e9 deux interventions chirurgicales pour enlever la tumeur et tous les ganglions lymphatiques du c\u00f4t\u00e9 droit. Cela a \u00e9t\u00e9 suivi par des mois de chimioth\u00e9rapie et de radioth\u00e9rapie. Je suis sortie de ces op\u00e9rations, chauve, maigre, arborant une tonne d'effets secondaires et une attitude \u00ab pas positive \u00bb tr\u00e8s culturellement inappropri\u00e9e \u00e0 propos du cancer du sein. Je ne croyais pas que c\u2019\u00e9tait un don du ciel. Je pensais avoir fini avec. Sauf que je ne l'\u00e9tais pas.<\/p>\n

En mai 2015, j'ai \u00e9t\u00e9 diagnostiqu\u00e9 \u00e0 nouveau. J'ai trouv\u00e9 la grosseur et je savais que ce n'\u00e9tait pas normal. Bien que ma derni\u00e8re mammographie remonte \u00e0 moins de 6 mois, mon oncologue a fait confiance \u00e0 mon instinct et en a programm\u00e9 une autre. Une \u00e9chographie et encore une autre biopsie ont confirm\u00e9 un cancer de stade 1 de cancer \u00e0 r\u00e9cepteurs d\u2019\u0153strog\u00e8nes et progest\u00e9rones (ER\/PR) positifs dans le sein gauche. C'est \u00e0 ce moment-l\u00e0 que j'ai commenc\u00e9 \u00e0 penser \u00e0 subir une double mastectomie.<\/p>\n

J'ai d\u00e9cid\u00e9 de rencontrer \u00e0 la fois un chirurgien du sein en oncologie et un chirurgien plasticien pour voir quelles \u00e9taient mes options. Pendant que j'attendais, j'ai \u00e9t\u00e9 bombard\u00e9e de remarques bien intentionn\u00e9es du genre \"Enlevez-les \u2013 moi, je le ferais\", \"C'est un travail de seins gratuit !\" C'est g\u00e9nial, non ? \u00bb \"Est-ce que vous les utilisez ?\" J'avais un rapport un peu plus ambigu avec mes seins \u2013 et j'enviais leur clart\u00e9 d\u2019esprit. Bien s\u00fbr, j'ai un rapport un peu ambigu \u00e0 beaucoup de choses. J'ai toujours eu du mal avec le noir et blanc. Cela semble\u2026 si noir et blanc.<\/p>\n

Le premier rendez-vous ne s'est pas bien pass\u00e9. Je n'\u00e9tais pas enthousiasm\u00e9e par l'id\u00e9e des implants et j'ai \u00e9t\u00e9 inform\u00e9e assez cr\u00fbment par un chirurgien plasticien que je n'avais pas assez de graisse pour avoir une reconstruction avec mes propres tissus corporels. Elle pourrait peut-\u00eatre en fabriquer un. Je lui ai demand\u00e9 si je devais choisir mon pr\u00e9f\u00e9r\u00e9 ? l\u2019expression dans son visage ne m'a pas emp\u00each\u00e9 de sugg\u00e9rer qu'elle en fasse une au milieu de la poitrine. Le rendez-vous ne s'est pas bien termin\u00e9. Ma l\u00e9g\u00e8ret\u00e9 d\u2019esprit n'\u00e9tait pas plus appr\u00e9ci\u00e9e par elle que ma r\u00e9ticence \u00e0 avoir des implants. Mon rendez-vous suivant avec le chirurgien oncologue du sein a abouti \u00e0 la d\u00e9cision de subir une autre tumorectomie suivie d'une radioth\u00e9rapie. En arrivant \u00e0 la porte, j\u2019\u00e9tais confiante que j'avais fini.<\/p>\n

M\u00eame \u00e0 ce stade, je ne me rendais pas compte que je prenais des risques. Par la suite, j\u2019ai subi pendant 4 ans des tests constants, des scanners, de biopsies et chaque fois qu\u2019il y avait un soup\u00e7on, j\u2019avais de plus en plus peur. J'ai re\u00e7u un diagnostic de Stress post traumatique. En juillet 2019, apr\u00e8s des ann\u00e9es d'anxi\u00e9t\u00e9, j'ai dit \u00e0 mon oncologue que je voulais que mes seins disparaissent et que je ne faisais pas de reconstruction. Sur Internet et dans des groupes Facebook priv\u00e9s, j'ai trouv\u00e9 des femmes incroyables racontant leurs histoires et partageant des images avec audace. Je suis retourn\u00e9e dans le m\u00eame bureau du chirurgien oncologue du sein avec des photos de ce que je voulais, gr\u00e2ce aux images Web vol\u00e9es, et lui ai dit de me faire ressembler \u00e0 un gar\u00e7on de 14 ans. Il a \u00e9t\u00e9 choqu\u00e9 et a tent\u00e9 \u00e0 plusieurs reprises de m'en dissuader, mais je me suis r\u00e9veill\u00e9e de l\u2019op\u00e9ration sans seins et avec une belle couture \u00e0 plat.<\/p>\n

Aurais-je fait cela plus t\u00f4t si j'avais su que la densit\u00e9 de mes seins m'exposait \u00e0 un risque plus \u00e9lev\u00e9 ? Une partie de moi pense, que si j'avais su, ma deuxi\u00e8me op\u00e9ration aurait \u00e9t\u00e9 une double mastectomie ou peut-\u00eatre ma premi\u00e8re op\u00e9ration. Avec du recul on voit toujours plus clair. Ma seule conclusion est que nous avons besoin de plus d'informations. Nous avons besoin de tous les outils possibles pour prendre des d\u00e9cisions \u00e9clair\u00e9es. J\u2019aurais voulu savoir si la densit\u00e9 mammaire a un impact sur mon diagnostic. Je veux savoir si les implants ne sont souvent pas, comme souvent pr\u00e9sent\u00e9s, une chirurgie d\u00e9finitive. La maladie des implants mammaires est-elle une possibilit\u00e9 ? Dites-moi. Les tests g\u00e9n\u00e9tiques sont-ils utiles ? Dites-moi.<\/p>\n

Mon conseil dans tout \u00e7a. Poser des questions. Beaucoup, beaucoup de questions. Et demandez en plus. Le probl\u00e8me pour la plupart d'entre nous est que nous avons un temps limit\u00e9 pour comprendre tout cela. Vous recevez un diagnostic et passez \u00e0 plein r\u00e9gime en mode panique. Je n'avais pas affaire \u00e0 un diagnostic de cancer actif lorsque j'ai d\u00e9cid\u00e9 de subir une double mastectomie sans reconstruction. Cela signifiait que je pouvais prendre des mois pour enqu\u00eater et d\u00e9cider du meilleur itin\u00e9raire pour moi-m\u00eame. Ce n'est pas une option que la plupart d'entre nous ont.<\/p>\n

Je pense que beaucoup de choses ont chang\u00e9 au cours des 11 ann\u00e9es \u00e9coul\u00e9es depuis que tout a commenc\u00e9 pour moi. Il en faut plus. L'un des plus importants, outre l'information, est que nous devenions visibles les uns pour les autres. En plus de continuer \u00e0 contribuer aux discussions en ligne, j'ai cr\u00e9\u00e9 mon propre compte Instagram pour pr\u00e9senter la mode pour un corps aplati. Cela a \u00e9volu\u00e9 non seulement vers la mode, mais aussi vers des r\u00e9flexions sur le cancer, la sant\u00e9 mentale et parfois ma vie et ma pratique artistique. Je suis d\u00e9pass\u00e9e par le soutien des gens non seulement qui sont dans le domaine du cancer, mais aussi des gens ordinaires de tous les horizons qui ont \u00e9t\u00e9 touch\u00e9s par le cancer. Et qui ne l'a pas \u00e9t\u00e9?<\/p>\n

Not in the Pink is available here: https:\/\/notinthepink.ca<\/p>\n

https:\/\/notinthepink.ca<\/a><\/p>\n

Instagram flat fashion account: not_in_the_pink_<\/a><\/p>\n

Martel\u2019s artwork: https:\/\/grantberggallery.com\/artist\/tina-martel\/<\/a><\/p>\n

http:\/\/notinthepink.ca<\/a>
\nhttp:\/\/www.tinamartel.com<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Tina Martel est enseignante en beaux-arts et artiste professionnelle. Elle est \u00e9galement l'auteur du livre illustr\u00e9, prim\u00e9 \u00e0 plusieurs reprises Not in the Pink, bas\u00e9 sur son premier diagnostic. Tina a \u00e9t\u00e9 pr\u00e9sent\u00e9e en ligne et dans de nombreuses publications en tant que mod\u00e8le plat et porte-parole de \"vivre \u00e0 plat\".<\/p>","protected":false},"author":4,"featured_media":12560,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[82],"tags":[],"class_list":["post-12495","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog"],"yoast_head":"\nTina Martel has gone through breast cancer twice. 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