Jackie
My story does not have a happy ending, and if that is what you are hoping to find, I want to gently tell you now: this isn’t that kind of story. You may choose to stop reading here, and that’s okay.
My story begins in 2023, at age 62, during what I believed was a routine mammogram through the Ontario Breast Screening Program. The left breast was flagged as “highly suspicious of malignancy,” while the right was deemed to have been completely clear. I was told my breasts were dense — dense enough to hide small masses — something that had been noted in earlier mammograms as well. Still, nothing had been detected before. Nothing had warned us.
But something was missed. Further imaging revealed cancer in both breasts. Biopsies confirmed two different types of invasive breast carcinoma. There was no lymph node involvement, and it seemed — at least then — that the cancer was contained. I was diagnosed with triple negative breast cancer in the left breast, and hormone-responsive breast cancer in the right.
Because my sister had died of invasive breast carcinoma at 66, my history strongly suggested a hereditary link. Genetic testing found nothing. I was told this didn’t rule out an inherited mutation — only that current testing couldn’t detect one. Still, I was deemed ineligible for annual breast MRI under the OBSP High Risk program.
When I met my surgeon, I asked immediately for a double mastectomy. She reassured me that there was no survival benefit, and that lumpectomies with sentinel node dissection would offer excellent outcomes. I trusted her expertise. I underwent bilateral lumpectomies, followed by chemotherapy and radiation — treatment that carried me through the rest of 2024, ending on December 31.
Mammograms in 2025 showed nothing concerning. But triple negative breast cancer often returns around the 2–3-year mark.
In July 2025, I had a CT thorax, an MRI of the head after a fall, and another routine mammogram — again, “no new findings.” I was discharged from all Oncology (surgical and medical) care. On September 16, 2025, my Radiation Oncologist told me, with warmth and confidence, “You are completely free of cancer. Congratulations. Go enjoy your life.” He didn’t even feel the need to examine me; the other 2 specialists had released me from their care, and the imaging seemed clear.
Then came December 23, 2025. It had snowed. I went out to shovel the drive, came back inside chilled, and decided to take a bath. That’s when I saw it — a lump under my left armpit. I took pictures; a friend who is a Nurse Practitioner urged me to get a biopsy immediately.
In a panic, I contacted the original NP who had been involved in my care throughout 2023/2024. But it was just before Christmas, and appointments were scarce. The earliest oncology appointment was nearly a month away. I couldn’t wait. Because she was familiar with my history, she offered to see me in her clinic on January 9, 2 ½ weeks away.
I spent Christmas and New Year’s in quiet agony. I was obsessed.
The NP was proactive and on January 9, I had a bilateral mammogram with contrast. The findings were “highly suspicious for recurrent invasive mammary carcinoma and segmental DCIS.” On January 13, during the biopsy, the Radiologist looked at me and said softly, “I’m very sorry.”
On January 19, a CT thorax revealed lung lesions. The cancer had spread. It was now metastatic — terminal — and my care shifted to palliative.
I began first-line chemotherapy.
On April 27, a repeat CT showed further spread. I was about to retire two months later on June 30th at age 65.
First-line chemo failed. I began second-line treatment.
If things continue as they are, and if I’m very lucky, I may follow the same path my sister walked before me — passing at 66 years and 4 months — despite the insistence that there was “no genetic component.” She created a blueprint and I’m walking in her footsteps. Whether accurate or not, it feels as though her death taught nothing, and mine may teach nothing too.
Facing death is profoundly lonely. Even with support systems, even with friends who show up every day in every way they can, even with family who love deeply — though their grief may come out as anger, frustration, fear, or helplessness and how those are manifested — the truth is that this path is walked alone. Love surrounds you, but the journey is solitary.
There are good days and bad days. There is too much time to think — about cancer, about dying, about what becomes of your home, your car, your (now heavily taxed) savings, and how to say goodbye to your children without breaking their hearts, though you know heartbreak is unavoidable.
I’m not sharing my story for pity. I don’t want that. I’m sharing it because I want to leave you with this:
- Advocate for yourself. Pay attention to your body. Notice changes. Even, and especially, if someone tells you you’re “free and clear,” keep checking. Every day. Don’t believe everything you’re told.
- Love your family and friends fiercely. Appreciate them. Let go of old fights. Make amends. Forgive, and ask for forgiveness. None of the rest matters. Hug them often.
- Demand the best care. Ask for the most thorough tests. Question everything. You deserve answers.
- Support better testing and better equipment. I believe the system failed me, and it failed my sister. Push for change. Contact your local government. Insist on improvement.
- Be kind — to yourself and to others. Those who love you aren’t sick; they may not understand how you feel, especially if you hide it well. Forgive yourself for being ill. Let others react in their own ways. And give them a break; they are grieving too.
- Be grateful for the people who care for you. They may not fully understand, but they are trying. Symptom management is imperfect and often harder than treatment itself. This is still a young science. They are doing their best. Tell them you appreciate them.
If you’ve read this far, I wish you strength on your own journey. I wish you clarity, courage, and love. I hope you carry my advice with you and add your own wisdom to it.
And above all, I hope you live — deeply, gently, and with the people you love close by.
Jackie
